Integrated Patient Storytelling
Working with the Royal College of Physicians' Health Informatics Unit Prue Thimbleby developed a methodology which she named Integrated Patient Storytelling (IPS) to present findings of a study to better understand the needs of service users in relation to personal health records (PHRs).
Researchers had collected and analysed views from people with various long-term conditions including diabetes, younger-onset dementia, depression, cancer, ulcerative colitis, renal failure and liver failure. Views were also sought from carers of people with autism, cerebral palsy, Down's syndrome, dementia and mental ill health.
Integrated Patient Storytelling (IPS) applies oral storytelling techniques to anonymised qualitative data gathered from service user interviews and focus groups. From each set of data one audio recording was made telling the story of the combined experiences of the participants. These six user journeys provide powerful insights into how people experience PHRs.
Josh & Michelle's Story