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Contributors
Thursday 27th PhD student day in the Atrium, Cardiff
Heidi Dahlsveen
Storyteller/Associate Professor OsloMet - metropolitanunivesity
Keynote Workshop - Artistic research – life and death – the autobiographical and the traditional.
In this workshop, the participants will work through exercises, dialogues, talks, theory and stories, experiencing the blurring of art and academia.
Anna Woolf
PhD Candidate, Royal Central School of Speech and Drama
This interactive presentation will encourage delegates to consider young people with invisible disability and their transition in health care practices, by exploring the process of zine making using digital media.
Christoforos Pavlakis
PhD Candidate, University of Athens
Enhancing the cultural sensitivity regarding spirituality and spiritual care and reviewing effective educational practices (learning objectives, activities, outcomes and assessment) in relation to spiritual care.
Eli Lea
Photographer, Digital Storyteller and PhD Student at VID Specialised University
This talk will share stories told by people with dementia, and present the arts-based research method used to support their creative agency and engage them in telling stories.
Ginny Topp
Artist
I will be showing a short video which includes audio and film recorded during my hospital treatment in addition to film shot in the ceramics studio. I will also give a short talk about my experience and be happy to answer any questions honestly and frankly.
Lijiaozi Cheng
PhD Researcher Sheffield University
How healthy is each of us and what exactly is being healthy? A story of a research journey that started from the uncertainty of “Am I well?”
Mandeep Singh
Medical Student King’s College, London
Rap music acts as a powerful means for individuals to know and tell their stories through. Mandeep Singh, a medical student and rapper, shares findings from research in collaboration with KCL, UCL and Key Changes exploring the ways in which urban music recording sessions improve recovery rates in individuals under psychiatric care.
Miranda Quinney
PhD Student University of South Wales
In this interactive presentation I invite the audience to discuss the impact that control and the identity of the listener have on the teller’s choice of which story to tell, sharing my experience as a storyteller and the learning gathered to date in my PhD study at the University of South Wales.
Rachel Hawley
Leadership Associate, Yorkshire and the Humber Leadership Academy
Healthcare touches all our lives, yet interactions between health professionals and the public are often characterised by an imbalance of power, control and information - stories (narrative and visual) offer new insights for cultivating collaborative leadership, beginning not with process but self-discovery.
Rahul Mittal
PhD Student, University of Exeter
Home is where we are safe to be who we are and where we are connected
Sarvenaz Sohrabi
PhD Researcher, University of Southampton/Winchester School of Arts
The ambition of the project is to allow participants to paint their pain using colours and brushes. Then we re-imagine their paintings, and turn them into artworks using state of the art technologies such as; 3D printing, music, video, etc. This project is made possible through our collaboration with engineers and scientists at the University of Southampton. Twitter @PYPUOS
Thursday 27th Evening at the Waterfront Museum , Swansea
Vanessa Yim
Research Assistant, King’s College London
Soul Relics Exhibition
What if there were a museum that displayed the relics of our souls, containing the legacy and testimony of our memories, hope and grief? How can we better harness the power of stories? Can we create a sustainable archive and platform?
BEYOND THE BORDER PRESENTS
Daniel Morden
Storyteller
The Beast In Me – stories of transformation
Heidi Dahlsveen
Storyteller
Frigg lost her son and so did I – a performance based on Norse mythology and autobiographical stories.
Friday 28th Morning sessions in Swansea
Stephanie Dale
Founder and Facilitator at The Write Road
Australian journalist Stephanie Dale has spent five years in the Australian Outback exploring the power of writing and storytelling for good health and wellbeing. She is particularly curious about the role of courage in writing for recovery, specifically its connection to physical healing.
Bonnie Millar
Musculoskeletal project manager, University of Nottingham
The power of original pieces of writing from anyone with a personal first or second hand experience of life-affecting health conditions to foster exchange and understanding between different groups.
Cheryl Beer
Author working in Applied Story, Ethnography & Well Being.
Exploring personal narrative & the power of story, as an integral part of the healing journey.
Kathryn Aldridge Morris
Writer, carer and writing for wellbeing practitioner
The carer of a parent with multiple myeloma explores, with examples from her own writing, how creative journaling has helped her stay mentally well throughout the process, and navigate the foreign lands and tongues of the NHS.
Lynne Walsh
Campaigning Journalist & Tutor
If you write the story of your life, will it be the truth, the whole truth and nothing but the truth? Or will you exaggerate? Will you skip the parts you’d prefer to forget? Would you – should you – control and even censor your own narrative?
Ruth Chalkley
Poet & Ambassador for Neurological Conditions
Writing poetry has been a vehicle for me, taking me on a rehabilitative journey, something I have called moving from Mawkish to Hawkish.
Daniel Morden & Idris Baker
Storyteller & National Clinical Lead for palliative and end of life care in Wales
What strategies do doctors use to break bad news to patients? Storyteller and cancer patient Daniel Morden speaks with ABMU Palliative Care Specialist Idris Baker.
Fiona Collins & Vita Zilite
Storyteller & Social Worker
Talking the Talk at the Death Cafe
At Conwy County Social Services’ celebration of Dying Matters Week, local people were invited to share their thoughts on death, whether as a participant in, or an observer of, the process of dying. This performance is the result.
Adinda van 't Klooster
Artist
This talk/presentation is about two art projects that have used poetry, storytelling and art to raise awareness of stillbirth and increase mental wellbeing as a result.
Nick Andrews
Research and Practice Development Officer Swansea University
This workshop will outline an inspiring storytelling approach that is being used to support a collaborative approach to prevention and the promotion of well-being in in rural and urban communities across Wales
Dan Yashinsky
Storyteller
This workshop will introduce participants to the three main elements of storycare: storytelling, storylistening, and storykeeping.
Eleanor Shaw
Artistic Director for PeopleSpeakUP
Nurturing new storytellers small group workshop
Friday 28th Afternoon sessions in Swansea
Anne Marie Bollen et al
Lecturer in Mental Health Nursing. Expert in the Lived Experience & Student Nurse
How can I live when the doors to the world are shut by people who care?
Kathryn Watson
Doctor & Visual artist
This talk is an illustrated journey of my experiences of borderline personality disorder and schema therapy, and highlights the power of art as a means to understand and communicate internal power struggles and to promote emotional healing.
Lyndsey Bakewell & Mike Wilson
Research Associate in Storytelling and Creative Practice & Professor of Drama
This talk explores how storytelling methodologies, including creative practice, performance and digital storytelling, can assist with the management of mental health challenges by focusing on personal experience.
Leah Salter et al
Highly Specialist Family and Systemic Psychotherapist
This presentation showcases the power of ‘coming together’ as a group of women who are interested in traditional storytelling, personal storytelling and expressive arts to reconnect with our own unique creativity to go forward in our lives.
Christina Wilson
Writer
Eating disorders affect 1 in7 women in pregnancy, but their story is untold, shrouded in shame and secrecy. Christina will share her poetic response to her own experiences, reflecting on the importance of finding a voice and the healing qualities of creative writing.
Rachel Taylor Beales
Singer-songwriter- performer- socially engaged arts practitioner
Singer songwriter, Rachel Taylor-Beales merges a contemporary version of a folklore selkie myth with her own autobiographical journey through birth trauma and perinatal mental health issues using a combination of music, song, visual image and storytelling.
Tracy Evans
Performance Artist & Independent Researcher
Dr Tracy Evans and Eleanor Shaw share their findings from a pilot project of Birth Café: supporting women who have given birth to find new ways of telling their experiences from an embodied perspective. This work follows on from Tracy’s PhD research which explored the ways that women perform birth stories after trauma.
Emily Underwood Lee
Research fellow at George Ewart Evans Centre for Storytelling, University of South Wales
‘Performance and the Maternal’ is an ongoing research project in which we (myself and Dr Lena Simic from Edge Hill University) explore how mother/artists have represented their experiences and explore the inter-disciplinary learning that can happen when we share our maternal stories.
Eve Krahe
Dean Of Graduate Education, College Of Health Professions,
University Of Phoenix
Join us as we detail the birth of the first-ever Storytelling Certificate program for faculty teaching in health administration, and its ability to cultivate empathy in faculty and students.
Alda Correia
Medicine is an art based in science (William Osler)
Josie Crawley
Principal Lecturer, School of Nursing, Otago Polytechnic
A picture book can build a compassionate nursing student – a brief introduction to how the School of Nursing, Otago Polytechnic, New Zealand embeds client narrative.
Mary Louise Chown
Artist Storyteller
In death, as in life, stories are always relevant, helping us realize that we have so much in common and that we are not alone. Mary Louise Chown will demonstrate how she has taken storytelling and music to people in palliative care and hospice settings
Joseph Sobol
the Director of the George Ewart Evans Centre for Storytelling at University of South Wales
Drawing on many years of research with cancer patients’ stories, the Director of the George Ewart Evans Centre for Storytelling at University of South Wales guides participants into the wilds of “the kingdom of the ill,” to experience the links between illness narratives and traditional stories and myths.
Mandeep Singh
Medical Student King’s College, London
Rap music acts is a powerful means for individuals to know and tell their stories. Mandeep Singh, a medical student and rapper will offer a small group workshop to learn how to rap.
Friday 28th Plenary and evening Keynote performance
Kathryn Mannix
Consultant in Palliative Care & Author
Katherine Mannix has spent her medical career working with people who have incurable, advanced illnesses. She is the author of the award winning book ‘With the end in mind’. These are stories about people who could have been your friend, your sister, your dad, your son. These are stories about normal humans, dying normal human deaths, and they offer us illumination, models for action, and hope.
Peggy Shaw
Split Britches Performance Company
In the performance of RUFF, Peggy Shaw ruminates on life before and after the stroke she had in 2011 and pays tribute to those who have kept her company over the last 70 years. Peggy says there are dark spots and blanks in her memory now and the performance is a lament for the absence of those who disappeared into the dark holes left behind and a celebration that her brain is able to fill the dark spots with new insight.
Saturday 29th Morning Keynotes in Swansea
Pip Hardy & Tony Sumner
Co-founders and Directors, Pilgrim Projects/Patient Voices Programme
Statistics tell us how the healthcare system experiences the patient, whereas stories tell us how the patient experiences the healthcare system. In healthcare there are so many voices waiting patiently to be heard, not just those of patients, but all telling stories of care.
Steve Blackburn & Carol Rhodes
Lecturer at Keele University & Patient and Public Involvement & Engagement Advisor, Arthritis Uk
The generosity of many sharing expertise has achieved the compilation of an evidence based toolkit to help with future storytelling endeavours; funded by NHS England and Keele University. How to support all stages of the story telling process from identification to evaluation.
Prue Thimbleby
Arts in Health Coordinator Swansea Bay Health Board
Embedding Storytelling in the NHS. In Swansea Bay Health Board patient stories are listened to at the start of all meetings. Our main methodology is digital storytelling and we have digital story facilitators in every delivery unit.
Saturday 29th Morning sessions in Swansea
Lynne Watson & Dr Rachael Hunter
Clinical Specialist Physiotherapist, Swansea Bay Health Board & Clinical Psychologist
Our unique patient story was hailed inspirational, motivating and thought provoking by our patients and was delivered by Dr Rachael Hunter in collaboration with the MS Society. What is the key to our success?
Katrina Glaister
Head of Patient Experience Salisbury NHS Foundation Trust
This talk highlights work that explored how patients/relatives felt about presenting their story to the Trust Board of a district general hospital in the South of England; and how changes were made to the process as a result of their feedback
Emma Barnard
Artist
An Artist’s perspective on her collaboration with an ENT Consultant surgeon and his patients. Giving patients a ‘visual voice’
Juping Yu et al
Research Fellow
University of South Wales
To the best of our knowledge, this is the first time a walk using a patient story has been embedded within clinical simulation in nursing education.
Aurora Piaggesi
Storyteller & Filmmaker
What does it mean living with chronic wounds? Aurora Piaggesi travelled around Europe with her camera to find out. The result is a multimedia project where stories are meant to create sense, comprehension and acceptance.
Heloise Godfrey-Talbot
Artist & Lecturer at University of South Wales
Bodies let us down. They also do amazing things. A body may dance, glide through water, feed a child, hold on. A film capturing movement across three generations in one family.
Emma Lazenby
Director of Formed Films
Perinatal Positivity - looking after your wellbeing through pregnancy and beyond, is a film and resources aimed at parents-to-be and health professionals.
Vincent Dance Theatre
Vincent Dance Theatre’s Art of Attachment celebrates the everyday resilience of women and children overcoming adversity and substance misuse, whose stories demand to be seen and heard. Made with the women of Brighton Oasis Project and supported by Wellcome Trust & Arts Council England.
Victoria Field
Writer and Writing for Wellbeing Practitioner
Funder Films CIC created a community where people living with dementia could read, write and perform poems to camera. Over thirty weeks, stories emerged, confidence grew, there was laughter and tears and a legacy of poem-films was created.
Elspeth Penny, Gene Feder & Alice Malpass
2BUProductions & Wellcome Trust funded Life of Breath Project
Breathlessness disrupts the narratives of normal life. It slows you down. Isolates you. It shrinks your world. In this interdisciplinary workshop we introduce examples of visual and written narratives of breathlessness as a starting point for exploring how breathlessness (as written on the body) can be more easily ‘read’ by GPs.
Lee Aspland
Freelance Creative
We are all photographers now. Smartphones have enabled us to share our world with the wider world. Explore how the creation and sharing of personal, resonant photos can support patients to move towards an understanding and acceptance of their new self.
Saturday 29th Afternoon sessions in Swansea
Lois Weaver & Peggy Shaw
Split Britches Performance Company
'The Long Table, conceived by Lois Weaver, is a dinner party structured by etiquette, where conversation is the only course.’ The Long Table is suitable for any number of people. All information is here: http://www.split-britches.com/long-table
Mette Boe Lyngstad
Storyteller & Associate Professor in Drama and Applied Theatre at
Western University of Applied Sciences
Introducing our research with substance abused, the creative processes, how we worked out a storytelling performance and what it meant for the dreamcatchers to be a part of this project.
National Theatre Wales, Gwent Arts in Health and Designer Becky Davies
Reflections on As Long as the Heart Beats - a unique promenade theatre collaboration at the Royal Gwent Hospital in Newport.
Katharine Low
Senior Lecturer, Applied Theatre and Community Performance, Royal Central School of Speech & Drama
A major challenge for South African youth is access to safe, equitable and non-judgemental healthcare. This presentation shares the outcome of a theatre project which placed the young people in direct conversation with a local health clinic, modelling an alternative way of listening to patient voice.
Performing Medicine
Clod Ensemble’s pioneering arts programme for healthcare professionals
Artists from Performing Medicine draw on techniques from theatre, dance and the visual arts to help healthcare professionals to use their bodies and voices for effective communication; to become more aware of their own needs as well as those of the people around them; and to appreciate the stories and experiences of others.
Bart de Nil
Senior staff member at FARO, Flemish Centre for Cultural Heritage in Brussels
How the reflections of patients changed the design of interventions with cultural heritage in Flanders.
Penelope Foreman
Chief Memory Maker and Storyteller at Clwyd Powys Archaeological Trust
A performance poem and moving image installation that draws together how Clwyd-Powys Archaeological Trust researches ways of experiencing the past through art, movement, and landscape interactions that can have significant impact upon mental wellbeing in diverse communities.
Chinyere Nwaubani
Griot-storyteller / Artistic Director for Shanti-Chi
Griot Chinyere inspires health with griot principles. Blending her skills as a movement stylist, and performer she will deliver a dynamic and lyrical presentation outlining - The Role of the Griot in 21st century Britain and exploring how community well-being can be achieved by applying griot way principles.
Ted Clarke
Poet
How a Welsh blanket inspired me to write creatively on its healing properties and enabled me to become more mobile after a diagnosis of arthritis.
Jennifer Lunn
Storyteller
Read For Good storyteller Jenifer Lunn collects stories told by children in hospital settings and they provide a fascinating insight into the personal emotional narratives of the tellers.
Steve Killick, Clinical Psychologist & Storyteller & Phil Okwedy, Storyteller
‘Feelings are Funny Things’ is a school based intervention that helps children and young people use stories and storytelling to explore the nature of emotions, thoughts and choices.
Julia Lockhart, Head of Contextual Practices at Swansea College of Art & Mark Blagrove, Professor of Psychology and Director of the Sleep Laboratory at Swansea University
Explore a recent or intriguing dream with psychologist Mark Blagrove and discuss how it is related to your waking life; while you recount the dream, artist Julia Lockheart will paint her visual interpretation of the narrative structure onto a page taken from Freud’s book The Interpretation of Dreams.
Saturday Plennary Performance
People Speak Up & Tenovus
Real people sharing real patient stories with an underscore of songs from The Sing With Us Tenovus Choir. Come and listen to a performance that will be an openhearted, life affirming sharing of stories and songs of bravery, challenge and survival.